Prayers for Wheelhorseman & Family

[DBlackston 298]

Wishing Scottie a good recovery, I had not realized his injuries were so severe. He sounds very determined to make a great recovery, sometimes sheer will can be the best medicine!

 

He has some amazing parents that obviously care for him very deeply, he will always appreciate all the things you did for him. Its very moving and inspiring to see the support you give him

 

I'm from way down in Kansas but I hope to make it up someday to meet you guys in person!

[wheelhorseman 3,211]

Update on Scottie:

 

On June 5, 2019 Scottie went in and had his hardware removed from his right elbow.  He had 11 titanium and stainless steel bolts and screws along with two titanium plates.  He was sent home with a soft cast and told to use it as normally as he can only lifting less than 2 lbs.  Well Scottie in true Scott fashion he tries to do more than he should and that is completely okay with Lowell and I as we want him to be as normal as possible.  

 

On June 13, 2019 Scottie and I headed back to Rochester to have his MRI completed for the doctors.  The reason why the doctors ordered the MRI is so they know how they want to proceed with the reconstructive surgery for Scott.  His MRI took about 90 minutes and then we headed to the doctors appointment to have out consult.  This is what we found out...Scott's reconstructive surgery will last about 10 hours and he will be hospitalized for a few days or longer.  The surgical team will have to make a total of five small incisions four on his abdominal area and one under his scrotum.  We will have two different surgeons in on the procedure and each has a fundamental role they play in his surgery.  One of the surgeons is the pediatric surgeon who has been changing out Scottie's catheters and the other surgeon is the adult urologist who has been on our case since day 1.  Scottie will have to undergo the reconnection of his urethra to his bladder.  What does that truly mean for Scottie?  Well he will have two catheters in place again, one in his penis and the other is the supra-pubic catheter.  He will have both of them in for six to eight weeks and then they plan on removing the penis catheter and see if the surgery works, if not then we have to undergo another surgery to place in a stent.  If the surgery takes place and his urethra does not collapse, then we will wait another six to eight weeks and take out the supra-pubic catheter.  Keep in mind that Scott does not have a valve to open or close his urethra so he will have no control over peeing.  We have to wait until December to place in an artificial valve in his urethra that will allow him more control of his urine, we will also be hospitalized for this procedure as well.  Please keep in mind that the doctors and surgeons do have a plan B but we are hopeful for Plan A to work.  

 

On June 14, 2019 Scottie and I headed back to Rochester where he had another catheter change.  He was in and out of the hospital in less that 2 hours.  That is Scott's new record.  This is when I found out from the surgeons that they have some concerns and that the medical team is busy trying to figure them out as they want Scott to be as normal as possible.

 

Some of the concerns are...being able to pee like a normal guy, to not leak, not wearing depends, being able to have an erection, having control over his bowels, being able to tell the difference between peeing and having a bowel movement, being able to have an ejaculation, being able to have children, making sure the nerves and neurons are all connected and working properly, and most importantly making sure that Scott will be as normal as he was on December 11, 2018.

 

On Monday June 17, 2019 we loaded up and headed out to the Big Show in PA to see our friends.  The trip was not all that bad for Scottie as he got to sleep most of the trip out there.  He was hooked up to his catheter bag while he was in the vehicle and once we stopped Scottie was capped and he got to be as normal as he could be.  We stayed at hotels along the way and was able to allow him to be as comfortable as possible.  Once we arrived at the Big Show, we were able to set up and have Scottie as comfortable as possible.  He was able to rest in out trailer and come out when he wanted to.  Though he was not out at our booth much, the few people who seen him, made his day.  

 

I want to say how much it means to see all of the love and support we have at the Big Show for our son Scottie.  His road to recovery has been long and difficult but we will be by his side every step of the way.  Seeing all of the Team Scott t-shirts and all of the Wheel Horse Parts and More apparel in the Big Show picture, makes my heart melt, just knowing how much you do care and love our son, Scottie.  I also want to say thank you to everyone who supported our benefit for Scottie by pre-ordering sweatshirts, blankets, t-shirts, and hats.  Without your love and support this road would be very difficult. 

 

The reconstructive Surgery is set for July 16, 2019 and we will be hospitalized for a few days.    Please keep us in your thoughts and prayers.  God Bless you and your family!  

 

 

Edited June 24, 2019 by wheelhorseman

[dells68 7,498]

Scottie is a very special young man and he is here with us because God has a big plan for him!  Keep the faith and he WILL DO GREAT THINGS!

[Blondeflutterby 45]

Very glad to meet you today, but even happier that I was able to support such a great cause. The Raether Family sends their prayers for a full recovery!

[wheelhorseman 3,211]

Update on Scottie

 

Scottie and I headed to St. Mary's in Rochester for his reconstructive surgery.  This reconstructive surgery was to re-connect his bladder to his urethra.  However, upon our arrival I received a phone call from his pediatric urologist asking us if we had left home yet, as they were having equipment malfunctions.  I informed the surgeon that we were already at St. Mary's and that we were about to check in.  He informed me that he was trying to get the other robot from the emergency department operating room and that he would call me back.  We checked in and went upstairs and upon our arrival, the nursing staff had no clue what was going on with the robot malfunction.  I informed them that Scott's surgery maybe cancelled and they went ahead and checked him in.  I did receive another phone call from the pediatric urologist informing me that he could not get the robot from the emergency department and that we had to reschedule his surgery next week or the following week.  

 

Lowell, Scott and I were relieved as to the surgeon's decision to cancel his surgery.  I was told that the robot was an important part of his surgery today and they did not want to risk the chance of him being cut open and the robot failing 20 or so minutes into the procedure and then not being able to complete the procedure.  I found out today that our hospital stay will be for 4 days or longer depending on Scottie's bowels and if he can regulate them or if he has control of them.  I will know more in the next upcoming days and will keep you posted.  

 

Thank you for all the prayers!  We surely do appreciate them and everyone of you!

 

Here is Scottie at Portage with Peacemaker Jack's Boys hanging out in our trailer.  Thank you!

 

 

 

Edited July 17, 2019 by wheelhorseman

[rmaynard 15,434]

Sorry you had to make the unnecessary trip, but better safe than sorry. 

[wheelhorseman 3,211]

Update on Scottie

 

Tuesday was the big day for us....Scott had his reconstructive surgery and now we are in the hospital for a few days.  Bryan, Scott and I arrived at St. Mary's at 8:30 Tuesday morning to get ready for the surgery.  His surgical procedure was called a urethralplasty, which is the re-connection of his bladder to the urethra.  This is normally a ten hour surgery, however, Scottie's only lasted six hours.  When the surgeon came out and spoke with Lowell and I, he gave us really good news.  During the procedure they were able to re-attach the sphincter muscles for the valve that opens and closes the pee stream.  With that being said there is only about one percent of less that his sphincter will work normally and he will be able to pee normally without leaking.  So we are still on the docket to have the valve surgery in December.  What about his erectile function?  Well we found out that all of that is intact and he should not have any problems with that  later in life.  As for the bowel movements and if he will have any control of that, we found out that none of the nerves were damaged during the accident and all Scott and I have to do is retrain his brain and teach him all over.  Keep in mind that this is okay for him to do.  

 

Scottie came out of the surgery with two catheters, one supra-pubic and one urethral, he has five incisions on his abdominal area above the belly button (this is where the robot was inserted and the procedure was performed), and lastly he has a jackson pratt pump that helps drain the fluid in that cavity.  The surgeons have him on his two different bladder medications, his anxiety medications, and pain medications.  So how has Scottie been since his surgery?  Tuesday night was rough because he got sick from all of the anaesthesia that he consumed in the operating room, he received high pain medications in the operating room so he was not hurting as much.  He did have some discomfort from having the new catheter in place in his urethra.  We had very little sleep.  Yesterday, Scottie got up and walked twice and sat in the chair twice.  He started eating normal foods and had no issues with being nauseated.  We were doing really well on his pain control until about 11 pm when all of the medication from the operating room wore off.  Scottie's pain started to get uncontrolled.  He was given his medications for his bladder spasms, he received his tylenol and motrin for the pain (which did not help), had his valium (no prevail), and he got a B&O suppository which the nursing staff did not want to give because it slows his heart rate down and they do not like that.  He got zofran because he had some nausea and the only medication that he really needed but never got was his oxy for his break through pain.  Last night I felt like I was fighting a loosing war with the nursing staff.  I understand that things happen and that Scottie is not their only patient but when he is in pain, well, help him get comfortable.  Scottie finally got comfortable around 3:30 this morning and he fell asleep between 4:30-5:00 am.  

 

We have talked to the doctors and we are looking at going home tomorrow (Scottie's Birthday) or on Saturday.  The only criteria that we have to meet includes the following,,,having his pain under control both during the day and especially at night, he poops, he is able to eat without feeling nauseated during the night and he walks.  So far we have not met the criteria. 

 

I do know that Scottie is looking forward to going to the Le Seuer County Pioneer Power Tractor Show and being around his tractor family and friends.  We do appreciate all of your prayers and thoughts.  We do love each and everyone of you and you will always have a special place in our family.  Please continue to pray for Scottie and our family. as we continue down this long road.  I will keep you all posted with anything new that arises on Scottie.

 

 

[CasualObserver 3,408]

Sounds like good news. Looking forward to seeing you guys again in a couple weeks!

[nylyon-(Admin) 7,273]

That's great news!

[wallfish 16,994]

Glad to hear the good news and  Scottie

[rjg854 11,360]

[wheelhorseman 3,211]

Update on Scottie 

 

Scottie and I were discharged from the hospital today!  What more could a guy ask for on his 15th birthday...to go home!  

 

 

[rjg854 11,360]

Welcome home Scottie  

[Pullstart 62,834]

Happy belated birthday, Scottie!  

[rmaynard 15,434]

Glad you are home Scott. Hope your birthday was good (as good as it can be under these circumstances).  I showed this latest picture to my wife and she noticed the two boxes of Nutty Buddies on the table.   Those things are a staple around the Maynard house. No wonder I can't lose any weight.

 

Good luck. I hope you heal quickly from this latest surgery.

[Tractorhead 9,064]

Happy Birthday Scottie, good to hear you‘re back home.

 

Stay healthy and keep growing.

All the best from my side of the Pond.

 

Let yourself celebrate properly 👍

[Sparky-(Admin) 21,315]

Thanks for the update.

   This story is always incredible to read and pulls at my heart every time I read one of the updates. Our son at Scotty’s age had a screw put in his hip and at around 10 years old had his appendix removed. Both were traumatic experiences for both my wife and I (and my son) but pale in comparison to the situation your working thru. 

  Congrats on the successful surgery!

[wheelhorseman 3,211]

Update on Scottie:

 

It is now October 6, 2019 and I realized that I have not posted anything since Scottie's last surgery.  So here I am updating you all on his progress and what has been keeping Scottie and I pretty busy.

 

On July 30 Scottie had his reconstructive surgery to reconnect his bladder and urethra.  He came home on his birthday and had two catheters in place.  He had one supra pubic catheter and one urethral catheter in.  We had to wait until September 5, 2019 to have a check up and cystogram done on his bladder.  Our appointment for the cystogram was at 9 am and we had a consult with the surgeon at 11 am.  We got called into our appointment for the cystogram.  What is a cystogram?  A cystogram is a test that requires a special dye that goes into Scott's bladder and they have a machine that takes pictures of his bladder as they fill the bladder and empty his bladder.  All of the images that were taken of his bladder and urethra came out better than what the surgeon expected.  Since there were no complications the surgeon decided that the urethral catheter had to come out and see how Scottie does peeing through his penis. The surgeon was worried that Scott would leak through his penis and we had to let him know if that happens.  We left and went to go get breakfast and came back for our 11:00 consult with the surgeon.  Once we made it back to the clinic Scott had to go to the bathroom and he peed a little bit without leaking.  We arrived at our appointment and we were told that we need to watch Scott for leaking, painful urination, straining during urination, and of course no peeing through his penis.  Scott informed the surgeon that he peed just before the appointment and the surgeon was surprised.  He and I both were surprised that Scott peed without difficulties and had no leakage.  We were set home with a new regime on how to care for Scottie...basically we have to retrain his bladder how to pee again and we have to stretch out his bladder like it was before the car accident.  I have to call Rochester weekly and let them know how it is going and if we are having difficulties. 

 

How is his retraining going?  Well, we have to remind him to go to the bathroom every hour and ask him different questions about his urine flow.  We have been improving on reminding him to urinate as he is able to do that himself now.  We did however have a little setback this past weekend where Scottie had a major bladder spasm and his urine flow was restricted and he had to strain to urinate.  I called Rochester and explained to them what was going on and they wanted to do another cystogram on his bladder and after that would see what our next plan would be.  We went over to Rochester on Wednesday and had the cystogram done.  Later that day, I received a phone call from the surgeon we found out that Scottie's urethra and bladder surgery was successful and that the area looks and operates like it did before the accident on December 12, 2018.  However, he has another issue where his sphincter is not relaxing for him to urinate.  He was placed on a new medication called Flomax and he takes it in the morning for 5 days and then we have to notify Rochester how he does and move forward.  However, the medication is not working like anticipated and so I have to call them on Monday and see what our next plan is.

 

Scott has started 10th grade and he is taking a full course load all while being home bound for school.  His classes that he takes are American Studies 10, English 10, Chemistry, Geometry, Algebra 2, Choir, and Agriculture Mechanics.  He is only about a day or two behind the rest of his classmates and until he got a new medication he was asking for more homework.  Now with the new medication, he is tired more and has headaches, and is cold most of the time.  We do have another appointment with the brain doctor about his concussion and we will find out what medication they want to put him on for that.    All in all, we received good news and at the same time we also know it will be long road before he can go back to school another 4 to 6 months.

 

We truly appreciate the prayers and support you all have given to us through out this time and we know that God is here every step of the way.  God Bless you and your families and just know that we love you all like family and we appreciate you being there for us every step of the way.

 

[nylyon-(Admin) 7,273]

Thank you for the update, I was thinking of him today glad to hear things are progressing!

[Sparky-(Admin) 21,315]

  Appreciate the update. Also appreciate the medical explanations you added, without them I would be scratching my head trying to comprehend much of it. 
  Happy to hear that Scottie has progressed in the right direction  !

[JC 1965 1,530]

Prayers still being sent your way Scottie.

[Pullstart 62,834]

Thanks for the update!  Go Scottie Go!

[Lost.soul.collecter 76]

Wow I'm so sorry to hear about this me and my family will be praying for them and the family God bless  

[Mickwhitt 4,612]

Best wishes and our prayers to your family from over here in England. 

 

I was a serious collision investigator in my previous job and that crash looked as bad as any I have dealt with. Side impacts are always bad as seat belts dont function for them. 

The little one was lucky to survive such an impact and come out as he has. I know there are a lot if long term injuries, but he is still with you.

Take care and look after each other.

All my love, Mick xx

[SylvanLakeWH 25,534]

Continued prayers...